Saturday, April 25, 2020

Family Ties




Recovery from the radiation infusion has gone well, with only a few side effects, mainly in the GI system. No unusual fatigue this time.  On this journey, it has been my faith communities, friends, and extended family that have helped me stay “calm and collected,” as my grandmother would put it.  I’ve felt surrounded by love, protection, and light.  A good medical team has planned and carried out the physical interventions needed, but the spiritual care is just as important.  I cannot control the changes that are happening within my body.  It helps to know that my mind and spirit can be strengthened by the support of my spiritual team (including all of you) as well as my personal meditation and prayer practices.

I have felt Andy’s spirit near me in these days.  Last Sunday, April 19, was the 19th anniversary of his death.  Most years I’m by myself on that day, but this year there are 10 family members all together sheltering during the pandemic.  So we had a family dinner with some of his favorite foods.  I thought how happy he would be if he could join us, not only to enjoy good, familiar food, but also to hear three languages being used at the table--English, Hebrew, and Mandarin, with an occasional comment in Spanish just to help the kids in their studies.  He tried to pass a bill when he served in the Legislature to require foreign language instruction beginning in grade one and continuing through 12th grade in our public schools.  It didn’t pass.  He believed in the value of understanding another culture and its language and world view as a way to encourage inclusiveness and deepen our appreciation of diversity.  And I think of him often these days for the support he secured for rural and border health programs when he was alive.  It would hurt his heart to see the deterioration of the health care system today,  but he would be encouraged by the commitment of many candidates and advocacy groups to build a system that provides health care for all.

One activity I dreamed up to involve our family in something fun during this time of confinement was a contest, complete with prizes, intended for all to join.  Three days were given to create some kind of art using items found on our property.  Cathy was the judge, and everyone produced something.  Some submissions were drawings or paintings, there was a mini-movie, a time progression video of a spectacular sunset, two photo collages, and an amazing sculpture entitled Junk in the Desert . My photo collage of plants and flowers growing in the desert surrounding our house is below.  Each participant in the contest received a small prize, items encountered when we worked on cleaning the garage or from my gift closet.  It was fun!

 
Resources
Some of you may have engaged with BrenĂ© Brown’s writings or her TED talk on vulnerability.  She has developed a podcast called “Unlocking Us.”  In the first offering, recorded on March 20, she talks about FFT’s (Freaking First Times—but I toned down the first “F”).  She points out that the first time we try to do something, it’s hard, we often make mistakes, we don’t know exactly what to do.  Living through a pandemic is an FFT for all of us.  She explains some of the dynamics of FFT’s and offers some suggestions on navigating them.  The podcast is free, and I highly recommend it.  Also her TED talk.

And here’s a prayer for our times by Nadia Bolz-Weber:

Dear God,
Some of us are exhausted by a constant stream of bad news.
Some of us are exhausted from the effort of trying to not freak out.
Some of us are exhausted by not knowing how we will pay rent.
Some of us are exhausted from the effort of trying to entertain and educate and feed and love children who are stuck at home.
Some of us are exhausted by the 13 hour shifts in a hospital we no longer recognize, working a job we are afraid might kill us.
Some of us showed up to this pandemic with pre-existing  physical and mental health conditions that were already exhausting. 
Some of us are exhausted by loneliness.
Some of us are exhausted by waiting so long for a new season of Succession.
And some of us are exhausted by the effort of trying to make this all ok for everyone else.
Life is so strained and tender right now.
I know that not a single one of us is promised another day, God.
But I guess I am asking for the strength for just the one we are in. 
Give us today our daily strength
Strength for today, and if you could spare it, bright hope for tomorrow.
AMEN.
p.s. HOSANNA in the highest

And I’m comforted by listening to the song “Deep Peace” by Sara Thompsen




Wednesday, April 15, 2020

Radioactive again




Help!  I’m being held prisoner in a bedroom!  Well, yes, it is my own bedroom with an attached bath.  Due to my new treatment and my radioactive status, I’m not allowed in the kitchen or near my grandchildren who are in other parts of the house.  Cathy or Michael and I communicate by cell phone when I need something. Old memory: I got my first mobile phone during the Katrina disaster.  Tucson was expecting a large number of displaced people, and we were setting up various services within different locations at the Convention Center.  It was essential to have cell phones to plan and network. Much more effective  than shouting.

Even my granddaughter Odyssey’s kitten, who loves to nap on my lap, is forbidden to be with me now.  We have observed that cats, unlike dogs, are unwilling to obey commands.  This independent kitty is Houdini-like in finding ways to disappear and reappear in any space she wants to occupy, so watching out for her antics keeps the rest of the family on their toes.

This confinement will last for 3 days, after which I still need to try to keep a distance of three feet from people for the next 14 days.  My clothes and towels need to be washed separately from the rest of the family.  Lots of precautions to keep everyone safe.  Before being allowed to leave the clinic my level of radioactivity had to be measured by a Geiger Counter to assure that it was low enough.  The machine looked ancient, but functional.

We met with my new oncologist last week by phone and yesterday, before the Lutathera treatment, on a video call.  I like him and the transition is happening smoothly.  We should know in a couple of weeks how effective the new treatment is.  I’m only the fourth person in Pima County to receive it. 

The 10 of us living together celebrated Passover and Easter  last week.  We observed these holidays in new and flexible ways, given the pandemic and its constraints.  Fortunately we are more concerned with the spirit of these occasions rather than orthodoxy.  Creativity rocks!  We also recognize how deeply we appreciate the value and importance of  family gatherings and traditions as part of the glue that sticks us together and affirms our identity.


I’ve found many rich resources online during the season of Lent and Easter, and resources shared by other faith traditions to help us through quarantining.  Prayers, stories of acts of kindness, music shared through the internet, educational seminars, all have nurtured my spirit.  I will include here one reflection that has helped me.

Blessing in the Chaos

To all that is chaotic
in you,
let there come silence.

Let there be
a calming
of the clamoring,
a stilling
of the voices that
have laid their claim
on you,
that have made their
home in you,

that go with you
even to the
holy places
but will not
let you rest,
will not let you
hear your life
with wholeness
or feel the grace
that fashioned you.

Let what distracts you
cease.
Let what divides you
cease.
Let there come an end
to what diminishes
and demeans,
and let depart
all that keeps you
in its cage.

Let there be
an opening
into the quiet
that lies beneath
the chaos,
where you find
the peace
you did not think
possible
and see what shimmers
within the storm.

- Jan Richardson