Before my
treatment the end of May, I read about recovery from radiation. There would be a period of three days when I
would be a danger to children, pets, pregnant women, and probably more folks because
of being highly radioactive. After that,
there were other possible and/or likely after-effects. These included nausea, diarrhea, headaches, appetite
and weight loss, and the most likely of all, fatigue. Anyone having radiation
treatments needs caretaker support for some weeks until they regain energy and
a clear mind.
For an
independent person, used to being self-sufficient and self-directed, being
cared for is difficult. Especially if it‘s
family and close friends doing the caretaking.
They are not being paid, so you can’t boss them around. They are doing it from love. Part of me wanted to minimize my need for
care so they could go about their normal lives and not have to be burdened by
responsibility for helping me. Truth be
told, that is not the full picture. At a
deeper level, there was a part of me that was uncomfortable with all the
evidence of love, which I wasn’t quite sure I deserved. I came to see, as time went on, that an
aspect of this journey was to accept and celebrate the goodness of others and
let it heal my body and soul.
After the
first days with few symptoms and a feeling of invulnerability, the fatigue
hit. Profound fatigue. There were more than two weeks when I slept
for 18-20 hours a day. I’d get up, have
breakfast, start to read, and fall asleep until lunch time. And the same pattern until dinner. Afraid I wouldn’t be able to sleep at night,
I tried to stay awake. Unsuccessfully. No problem sleeping at night, however, except
for the peculiar middle of the night episodes.
Many times, I would awaken near midnight, alert, and my mind would fix
on something I seemed to need to remember.
For three nights in a row, it was the full name of the President of
Turkey. I could remember the last name,
Erdogan, but could not bring up the first and middle names. There was no logical reason why I should be
concerned with his name, but it bothered me that I couldn’t recall it. By the third night, I was so annoyed that I
got up, opened the computer, and wrote it down so I could let go of that
preoccupation. (It’s Recep Tayyip
Erdogan.) I don’t really understand what
that was all about.
During the
entire month of June, I left the house only a few times, to give blood, go to
church, and attend one meeting of the Grandparent Ambassadors. At one point, experiencing “cabin fever” and
feeling close to despair about the slow recovery process, I called a close
friend to ask her to send an extra prayer for me. She was on her way to take her daughter to
camp, but she stopped and prayed with me over the phone, a prayer for healing
and hope. It reminded me that many were
already praying, and that I was blessed to have so much support. By early July,
the fatigue finally began to lift. I was
committed to healing so I could enjoy a family vacation at Ghost Ranch
scheduled for the last week of July.
There were 24 of us traveling to New Mexico, 10 adults and 14 children
including 3 babies. Thanks to all that
sleep and so much love, I was able to go.
We had a wonderful time enjoying nature and activities. Family rocks!
Resources
that helped during this phase included mainly music and meditation. Reading was difficult because of falling
asleep all the time, although I read some prayers and scriptures which were
familiar. I especially reflected on this
re-worded version of the 23rd Psalm:
God is my
constant companion. There is no need
that God cannot fulfill.
Whether
God’s course for me points to the mountaintops of glorious ecstasy
or to the
valleys of human suffering, God is by my side.
God is ever present with me.
God is close
beside me when I tread the dark streets of danger,
And even
when I flirt with death itself, God will not leave me.
When the
pain is severe, God is near to comfort.
When the
burden is heavy, God is there to lean upon.
When
depression darkens my soul, God touches me with eternal joy.
When I feel
empty and alone, God fills the aching vacuum with God’s power.
My security
is in God’s promise to be near to me always,
and in the
knowledge that God will never let me go.
Among the
songs I listened to, Leonard Cohen was a favorite, especially “Sister of Mercy”
and “Anthem”. Another was Sara
Thompsen’s “May the Longtime Sun”.
Finally, I rediscovered a song by Pat Humphries I used to listen to,
“Swimming to the Other Side.” The lyrics
are below.
We are living ‘neath the
Great Big Dipper
We are washed by the very same rain
We are swimming in the stream together, some in power and some in pain
We can worship this ground we walk on, cherishing the beings that we live beside
Loving spirits will live forever, we're all swimming to the other side
I am alone and I am searching
hungering for answers in my time
I am balanced at the brink of wisdom
I'm impatient to receive a sign
I move forward with my senses open
Imperfection it be my crime
In humanity I will listen
We're all swimming to the other side
We are washed by the very same rain
We are swimming in the stream together, some in power and some in pain
We can worship this ground we walk on, cherishing the beings that we live beside
Loving spirits will live forever, we're all swimming to the other side
I am alone and I am searching
hungering for answers in my time
I am balanced at the brink of wisdom
I'm impatient to receive a sign
I move forward with my senses open
Imperfection it be my crime
In humanity I will listen
We're all swimming to the other side
My longtime best friend/sister
of the heart sent me an Apache blessing:
May the sun
May the sun
bring you new energy by
day.
May the moon
May the moon
softly restore you by
night.
May the rain
May the rain
wash away your worries.
May the breeze
May the breeze
blow new strength into
your being.
May you walk
May you walk
gently through the world
and know its beauty all
the days of your life.

Will pass this on to a friend currently undergoing radiation. Thank you.
ReplyDeleteThank you Ann. Lots of love and thanks for your ministry to others.
ReplyDeleteI feel uplifted to read these words, especially the 23rd psalm. I feel frightened by the political mayhem in our country and world, and your perseverance through this cancer inspires me. Thank you and God Bless you and your loving caregivers.
ReplyDeleteThank you, Ann, for honoring your insights, documenting them and then sharing them with us. We can't help but be moved by your words. And learn from them. Blessings to you and yours.
ReplyDelete